EPP is an extremely rare and lifelong inherited condition arising from a high quantity of protoporphyrin in red blood cells, resulting in immediate pain when exposed to the sun’s blue light. Often occurring in childhood, EPP manifests as intense burning and itching of sun-exposed skin, especially on the nose, cheeks, and hands. It’s often followed by redness, swelling, or blanching, lasting from minutes to days.
Although a medical treatment has been developed for EPP, it is not available for children, for them, it’s necessary for patients to wear protective clothing and stay in shaded areas to protect themselves from sunlight. Even though we cannot cure the disease itself, we could help Charlotte enjoy her life a little bit more by protecting her skin with an extra-protective cosmetic sunscreen when she’s out in the sun, allowing her to play outside for longer.